Patient organisation
ahus-selbsthilfe
AdultsBlood and lymphatic system disordersRenal and urinary disorders
About the organisation
The aHUS-Selbsthilfe Foundation is an association that supports patients with atypical hemolytic uremic syndrome (aHUS), as well as membranoproliferative glomerulonephritis (MPGN), C3-glomerulopathy (C3G), or Dense-Deposit-Disease (DDD). They focus on the exchange of experiences and mutual support. The foundation's assistance includes creating a network of contacts with doctors and researchers, and organizing informational meetings and webinars. They also advocate for patients' rights, representing their interests to authorities, health insurance funds, and in politics.
Areas of specialisation
Where this organisation focuses its support
Diseases & conditions
Therapeutic area
Age groups served
Adults
Organisations working on this disease Partners active in Haemolytic uraemic syndrome
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